The Parkinson’s Journey – Chapter 1: You’re Out of Options for Parkinson’s Treatments
In the world of chronic illness, few words land harder than this one-liner: “I’m sorry, there’s nothing more that can be done for you.” It’s a phrase that marks a shift—sometimes sudden, sometimes creeping—where hope through traditional means seems to run dry. For people with Parkinson’s, especially those still adjusting to the diagnosis, hearing those […]
Protein and Parkinson’s: Three Things You Need to Know
For me, living with Parkinson’s feels like a daily battle just trying to time my meals around my medication. I often joke that my life with Parkinson’s has a “good vs. evil” battle: on one side, the L-DOPA medication that keeps me ON; on the other, protein-rich foods that keep my body going — but at a cost. […]
When the Urge Won’t Let Go: My Journey through Parkinson’s, Dopamine, and Compulsive Behaviors
Table of Contents Toggle Understanding Impulsive and Compulsive Behaviors (ICBs) When a Game Becomes a Trap How It Started: The Game That Took Over Regaining Control, One Tap at a Time Moving Forward With Hope A Caregiver’s View: When Love Meets a Hidden Struggle Frequently Asked Questions Support Our Work For Caregivers: Walking the Line […]
Sound Therapy and Parkinson’s: My Journey with SOMA Energetics Tuning Forks
Today I want to share something close to my heart: how sound therapy and tuning forks have helped me as a person living with Parkinson’s. First, I need to send a huge thank-you to SOMA Energetics for their unwavering support of the Parkinson’s community. They’ve been a beacon in the sound healing world since 1999, serving over 50,000 […]
MagnaReady – More than just a Sponsor
A proud day in my life! When Life with Parkinson’s was still in the development stage, and the plan of what it would become was being formulated, I had no idea what the final product would look like. I just did not have anything to really compare it with from my previous business experience. The […]
My new Parkinson’s vibration treatment – more than just a 6 month update
“It feels like I have hit a sweet spot with the ball. It’s gotten to know me so well with the AI technology, sometimes I fall asleep while using it. There is one situation where I do not use it, resting anxiety vs situational anxiety.” 6 months ago I started on a personal research journey […]
Compulsive and impulsive behaviors in Parkinson’s Disease – what it can feel like
I was so excited when the first personal computers from Radio Shack came out, I was lucky enough to get one, a Tandy 1000. I remember being introduced to my first video games around that time. Boy they were a lot of fun, I have enjoyed them my whole life, until now, because this has […]
Ending Parkinson’s Disease – A book review
Ending Parkinson’s Disease is a 4 author collaboration, by doctors on the frontline of the Parkinson’s landscape, who boldly attempt to answer the question of, ok, this is where we are at with PD, where do we, or where can we, collectively, go from here? The authors explain how we arrived at this current destination, […]
MagnaReady® – Clothing that overcomes mobility issues
Just think back to that time you were getting dressed for bed, getting ready for an outing, or just everyday chores, and suddenly, you couldn’t finish the job. Have you been there? I have. It is debilitating, and sometimes even dignity robbing. Each time my wife Hayley and I encounter that situation, we sometimes would […]
What’s New in My GDNF Fast Walking: A Weekly Update
Welcome to the first weekly update on my GDNF fast walking journey! I’m excited to share this journey with all of you! Week 1 and Week 2 Recap – August 26 – September 7, 2024 Week 1 had a special moment for me as I was able to take out the garbage for the very […]