The Parkinson’s Journey – Chapter 4: My New Parkinson’s VILIM Ball Treatment Update – 3 Months In
Living with Parkinson’s means navigating a landscape that is always shifting beneath your feet—sometimes subtly, sometimes abruptly. Over the past three months, I’ve been exploring a new form of vibration therapy using the VILIM Ball, a small device developed by Vilimed that’s designed to help manage Parkinson’s symptoms through localized mechanical stimulation. As someone who is not […]
The Parkinson’s Journey – Chapter 3: How I Made My Parkinson’s Treatment Plan
What makes a good treatment plan for Parkinson’s? That’s a big question. And if you’re like me, it can feel a little overwhelming at first. When I was first diagnosed, I had this fog of uncertainty that hung over everything. It’s not like someone hands you a perfect instruction manual with your diagnosis. There’s no one-size-fits-all […]
The Parkinson’s Journey – Chapter 2: My Parkinson’s Diet Plan: What You Need to Know
There’s a quote: “Let food be thy medicine, and medicine be thy food.” — Hippocrates It sounds simple, but it’s led me to reshape how I think about every bite I eat. If you’re wondering what’s changed for me lately, the answer lies in how I eat, what I eat, and most importantly — why I eat […]
The Parkinson’s Journey – Chapter 1: You’re Out of Options for Parkinson’s Treatments
In the world of chronic illness, few words land harder than this one-liner: “I’m sorry, there’s nothing more that can be done for you.” It’s a phrase that marks a shift—sometimes sudden, sometimes creeping—where hope through traditional means seems to run dry. For people with Parkinson’s, especially those still adjusting to the diagnosis, hearing those […]
Protein and Parkinson’s: Three Things You Need to Know
For me, living with Parkinson’s feels like a daily battle just trying to time my meals around my medication. I often joke that my life with Parkinson’s has a “good vs. evil” battle: on one side, the L-DOPA medication that keeps me ON; on the other, protein-rich foods that keep my body going — but at a cost. […]
When the Urge Won’t Let Go: My Journey through Parkinson’s, Dopamine, and Compulsive Behaviors
Understanding Impulsive and Compulsive Behaviors (ICBs) Before I learned the term ICB, I was living it. Experts define ICBs as irresistible urges to engage in activities that feel rewarding but can become excessive or harmful. These can include pathological gambling, compulsive shopping, binge eating, hyper sexuality, or punding (repetitive, purposeless tasks). In Parkinson ’s disease, ICBs are not a […]
Sound Therapy and Parkinson’s: My Journey with SOMA Energetics Tuning Forks
Today I want to share something close to my heart: how sound therapy and tuning forks have helped me as a person living with Parkinson’s. First, I need to send a huge thank-you to SOMA Energetics for their unwavering support of the Parkinson’s community. They’ve been a beacon in the sound healing world since 1999, serving over 50,000 […]
Sound Therapy and Tuning Forks for Healing Parkinson’s Disease
Introduction Sound can be profoundly healing. For people with Parkinson’s and their caregivers, creative therapies offer comfort and hope alongside medical treatments. Many have found that listening to music, feeling gentle vibrations, or using tuning forks can ease stress and even improve symptoms. In fact, one person with Parkinson’s described how sound therapy helped: “I lie down […]
MagnaReady – More than just a Sponsor
When Life with Parkinson’s was still in the development stage, and the plan of what it would become was being formulated, I had no idea what the final product would look like. I just did not have anything to really compare it with from my previous business experience. The funniest thing about all of this […]
Caregiving and Parkinson’s Disease
One thing that Hayley and I have noticed for a while is that there is not a lot of YouTube content for Caregivers of People with Parkinson’s(PWP’s). We aim to fill this gap with our new playlist that we are working on. We will list the videos on this blog as they are published, as […]